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  1.  
    Would be interested to chat to anyone who has had an ICD fitted or is thinking about getting it done.
    • CommentAuthoradmin
    • CommentTimeJul 27th 2006 edited
     
    Hi,

    Just in case anyone was wondering (like me) what an ICD is, here's a description:

    "An implantable defibrillator is a device made up a generator and leads that is permanently placed in the chest. The leads are fed through an artery to the heart so that the device can send electrical signals to correct an abnormal heartbeat or an electrical shock to reset a heart that is quivering instead of beating (fibrillation). It may also be called an implantable cardioverter defibrillator (ICD)."

    "Living with an implantable defibrillator means taking certain precautions. For instance, patients are advised to avoid walking through or lingering near metal detectors or any device that emits a strong magnetic field."

    Are you considering having one implanted wan_lucky_sod? Hopefully someone can give you a bit of feedback.

    Good luck,
    Michael.
  2.  
    Hi Michael

    Thanks for the reply. To explain, my name is Therese I was diagnosed with Long QT last year. Genetic tests have confirmed that I have LQTS type 1. My sister Grace is also a member of this forum and has posted our family history. Myself and Grace have been offered ICD's and are awaiting an appointment with a specialist nurse to talk things over. I would be interested to hear what people think of ICD's. Thanks
  3.  
    http://www.c-r-y.org.uk/Implantable_Cardioverter_Defibrillators.htm
  4.  
    Hi everyone,

    I had surgery on 8th November 2006 for an I.C.D. I now have a Biotronik device implanted. So far so good, just taking things easy and following the Doctors orders. If anyone would like to talk to me about I.C.D's or indeed Long QT syndrome please drop me a line.

    Therese
    • CommentAuthoradmin
    • CommentTimeNov 29th 2006 edited
     
    Hi Therese,

    Congratulations on your successful surgery, I wish you a speedy and full recovery.

    I'm kind of jealous, I wish I had a "Biotronik device", it just sounds so cool... :D

    Best wishes,
    Michael.
    • CommentAuthorGrace
    • CommentTimeSep 8th 2007
     
    Hello

    Just to say that myself and Therese both have these devices implanted now nearly a year. Everything is going well and we are both extremely happy that we have been lucky enough to be discovered before anything disastrous happened to either of us.

    After the tragic incidents that has lead to the death of two young boys this week in Northern Ireland, i feel that I need to congratulate Bridget McAnallen for all her hard work.

    I am contemplating how I am going to start off my campaign of awareness, I don't believe that enough people know about SADS, and I feel as a sufferer of LQT that it will help peoples understanding.

    anyway. I hope everyone in the McAnallen family are well.

    Grace x
    • CommentAuthoradmin
    • CommentTimeOct 8th 2007
     
    Hi Grace,

    Its good to hear you are both doing well, I wish you both the best of luck for the future.

    Take care,
    Michael.
  5.  
    Hello Grace and thanks for your messages and goodwill. It is great that you and Therese are fitted with ICDs and are happy with them.
    Iwill reply at a little more length if this gets through, the much longer piece I'v just done looks like it's been wiped out. Best wishes

    Bridget McAnallen
    • CommentAuthoraineb
    • CommentTimeApr 4th 2008
     
    hello, i have an ICD fitted for 2 and a half years now and all is going well thank god. It is a great device that offers great peace of mind. I would like to hear from anyone who has an ICD fitted and has given birth naturally, did having an ICD complicate the procedure, lead to difficulties etc? Were you aware of your heart racing etc during the experience? I'd be really grateful for any information, Cheers.
    • CommentAuthorKeith
    • CommentTimeFeb 12th 2009
     
    Hi there I had a ICD fitted in November 2005 after I had a Cardiac arrest which would have lead me to being another statistic of SADS had it not been for our local GP and her Defib. Having an ICD is a complete change of lifestyle and one that I have made the most off it is a new lease of life I was 29 when I had my Cardiac Arrest if anyone wants to talk about it I am here.
    • CommentAuthorTracey B
    • CommentTimeFeb 13th 2009
     
    Hi everyone! I have recently been advised by my cardiologist to have an ICD put in as I have Hypertrophic Cardiomyopathy and have been experiencing some nasty arrythmias in the past few years, i.e. non-sustained Ventricular Tachycardias. I am a bit reluctant to have it put in as I've heard a lot of stories about them going off unnecessarily which does scare me a little. I'd love to chat to someone who has one and get their feedback on it. I'm 46 and have 2 children so because of them, I'm leaning more towards having it put in as I don't want to take the risk of having a fatal arrythmia. Thanks for listening and look forward to chatting soon!
    Tracey B
    • CommentAuthorKeith
    • CommentTimeFeb 13th 2009
     
    Hi Tracey I have my ICD for 3 years and have never had any trouble with it. It can be worrying but it also seems to be ideal for your situation. I had a cardiac arrest in November and ever since any kind of miss beat or extra beat is worryong but I know a trip to the hospital and a quick scan of the ICD and I know that everything is ok. I would say go ahead and get it, it is a wonderful piece of equipment and a great peace of mind. Good luck with your decision and hope all works out.
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