Wed, 08 Sep 2010 14:20:15 +0200 http://www.thecormactrust.com/forum/ Lussumo Vanilla 1.1.4 http://www.thecormactrust.com/forum/comments.php?DiscussionID=33 http://www.thecormactrust.com/forum/comments.php?DiscussionID=33 Mon, 06 Sep 2010 13:43:01 +0200 stephenc My name is Stephen Comerford. My club is Nemo Rangers in Cork.
I hope to get 100,000 people to txt sads to 53306 by full time of the Cork v Down All Ireland final
Please help in anyway you can to get the message to friends and colleagues.
All texts cost 60cent. All funds go to the Cormac Trust
Thanks
Stephen
00 353 871247789]]> http://www.thecormactrust.com/forum/comments.php?DiscussionID=31 http://www.thecormactrust.com/forum/comments.php?DiscussionID=31 Thu, 19 Nov 2009 01:33:16 +0100 Cleerepj Dont know why I'm actually doing this - maybe because I'm still a bit in shock, noy sure but the Cormac forum seemed a good place to put it out and see what comes back.
Natuarally we are all so proud of what my eldest daughter did (and the youngest was on the phone to 999 at the same time) and all the medics since believe she bought her mother the time necessary to survive what now seems to have been a cardiac arrest (without any warning, chest pain etc etc)

CPJ]]> http://www.thecormactrust.com/forum/comments.php?DiscussionID=30 http://www.thecormactrust.com/forum/comments.php?DiscussionID=30 Mon, 12 Oct 2009 10:36:20 +0200 michaeljohn http://www.thecormactrust.com/forum/comments.php?DiscussionID=17 http://www.thecormactrust.com/forum/comments.php?DiscussionID=17 Thu, 27 Jul 2006 12:41:03 +0200 wan_lucky_sod http://www.thecormactrust.com/forum/comments.php?DiscussionID=29 http://www.thecormactrust.com/forum/comments.php?DiscussionID=29 Tue, 20 Jan 2009 16:18:26 +0100 MartyLoughran http://www.thecormactrust.com/forum/comments.php?DiscussionID=28 http://www.thecormactrust.com/forum/comments.php?DiscussionID=28 Sun, 18 May 2008 18:12:47 +0200 suzi Our son Mark Heffernan died in his sleep on jan 21st this year (23yrs). We now believe it was SADS. I discovered 'heart house' by chance on the internet. If you have had an immediate family member 40 yrs or younger who has died as a result of SADS you and your family are entitled to a full screening f.o.c. Myself and my sister Liz are 'walking' in the flora mini marathon on the June weekend for THE Mater FOUNDATION.]]> http://www.thecormactrust.com/forum/comments.php?DiscussionID=27 http://www.thecormactrust.com/forum/comments.php?DiscussionID=27 Tue, 11 Mar 2008 17:01:54 +0100 paulmca http://www.thecormactrust.com/forum/comments.php?DiscussionID=26 http://www.thecormactrust.com/forum/comments.php?DiscussionID=26 Fri, 07 Mar 2008 02:45:21 +0100 paulmca http://philodonnell.blogspot.com/]]> http://www.thecormactrust.com/forum/comments.php?DiscussionID=24 http://www.thecormactrust.com/forum/comments.php?DiscussionID=24 Mon, 11 Dec 2006 07:03:57 +0100 sessiagh

Bye]]> http://www.thecormactrust.com/forum/comments.php?DiscussionID=22 http://www.thecormactrust.com/forum/comments.php?DiscussionID=22 Mon, 30 Oct 2006 17:46:29 +0100 aineb http://www.thecormactrust.com/forum/comments.php?DiscussionID=21 http://www.thecormactrust.com/forum/comments.php?DiscussionID=21 Mon, 16 Oct 2006 01:10:21 +0200 grainnekeat http://www.thecormactrust.com/forum/comments.php?DiscussionID=11 http://www.thecormactrust.com/forum/comments.php?DiscussionID=11 Fri, 09 Jun 2006 13:31:11 +0200 susan
My son is at risk of SCD, he's just 8 & takes part in various competitive sports - his blood auntie died last March of SCD, just 24 & leaving 2 little children behind. We've all been so devastated, she had no prior symptoms - a bolt out of the blue & so far I've not been at all satisfied with the care we've gotten. Our GP admitted that I knew more about the condition than she did. He had the Echo & ECG but I've been told that the ECG needs to be read by the consultant rather than a computer?

I've been trying to get answers for over a year now & to be honest everyday I fear for my son. It's doing my head in. I've scoured all the sites on the internet concerning SCD, This website has been the best so far, by miles. So informative, yet, easy to understand...Big thanks to the Cormac Trust.

I have another appointment for Jack to see his doctor next wednesday 14th June so I'd be eternally grateful for any info before then so if anyone can help me, please email me at siouxi@hotmail.co.uk

(even if it's after that date please still email me...many many thanks) x]]> http://www.thecormactrust.com/forum/comments.php?DiscussionID=20 http://www.thecormactrust.com/forum/comments.php?DiscussionID=20 Fri, 29 Sep 2006 03:17:21 +0200 colette85
Just to say that myself and Therese both have these devices implanted now nearly a year. Everything is going well and we are both extremely happy that we have been lucky enough to be discovered before anything disastrous happened to either of us.

After the tragic incidents that has lead to the death of two young boys this week in Northern Ireland, i feel that I need to congratulate Bridget McAnallen for all her hard work.

I am contemplating how I am going to start off my campaign of awareness, I don't believe that enough people know about SADS, and I feel as a sufferer of LQT that it will help peoples understanding.

anyway. I hope everyone in the McAnallen family are well.

Grace x]]> http://www.thecormactrust.com/forum/comments.php?DiscussionID=3 http://www.thecormactrust.com/forum/comments.php?DiscussionID=3 Mon, 29 May 2006 13:22:04 +0200 nut http://www.thecormactrust.com/forum/comments.php?DiscussionID=19 http://www.thecormactrust.com/forum/comments.php?DiscussionID=19 Mon, 31 Jul 2006 21:48:51 +0200 Bridie
I had surgery on 8th November 2006 for an I.C.D. I now have a Biotronik device implanted. So far so good, just taking things easy and following the Doctors orders. If anyone would like to talk to me about I.C.D's or indeed Long QT syndrome please drop me a line.

Therese]]> http://www.thecormactrust.com/forum/comments.php?DiscussionID=8 http://www.thecormactrust.com/forum/comments.php?DiscussionID=8 Sun, 04 Jun 2006 16:32:43 +0200 UnaG http://www.thecormactrust.com/forum/comments.php?DiscussionID=18 http://www.thecormactrust.com/forum/comments.php?DiscussionID=18 Fri, 28 Jul 2006 19:14:34 +0200 user22 just making general inquiries as to when the jersey will be available to purchase and will it be on sale in the south?? Any info will be appreciated :D]]> http://www.thecormactrust.com/forum/comments.php?DiscussionID=16 http://www.thecormactrust.com/forum/comments.php?DiscussionID=16 Mon, 17 Jul 2006 16:37:32 +0200 user22 http://www.thecormactrust.com/forum/comments.php?DiscussionID=6 http://www.thecormactrust.com/forum/comments.php?DiscussionID=6 Thu, 01 Jun 2006 21:50:39 +0200 Gillian Also congratulations on a wonderful lauch yesterday in the Wellington Park, I enjoyed the day and it was a super information day as well.

Well done and keep up the good work.

Gillian : :D]]> http://www.thecormactrust.com/forum/comments.php?DiscussionID=10 http://www.thecormactrust.com/forum/comments.php?DiscussionID=10 Fri, 09 Jun 2006 13:24:43 +0200 http://www.thecormactrust.com/forum/comments.php?DiscussionID=12 http://www.thecormactrust.com/forum/comments.php?DiscussionID=12 Mon, 12 Jun 2006 15:05:15 +0200 P7 Greencastle http://www.thecormactrust.com/forum/comments.php?DiscussionID=14 http://www.thecormactrust.com/forum/comments.php?DiscussionID=14 Mon, 12 Jun 2006 15:25:26 +0200 Sean Fox http://www.thecormactrust.com/forum/comments.php?DiscussionID=13 http://www.thecormactrust.com/forum/comments.php?DiscussionID=13 Mon, 12 Jun 2006 15:16:45 +0200 Emma http://www.thecormactrust.com/forum/comments.php?DiscussionID=9 http://www.thecormactrust.com/forum/comments.php?DiscussionID=9 Thu, 08 Jun 2006 10:40:57 +0200 JDW http://www.thecormactrust.com/forum/comments.php?DiscussionID=2 http://www.thecormactrust.com/forum/comments.php?DiscussionID=2 Wed, 26 Apr 2006 15:37:51 +0200 DroimMhor15 Hello There!

Just wanted to say thank you to the Cormac Trust for providing a defibrillator in our community. We have five people trained to use the defib and it is housed at our local Fire Station for easy access to the whole community. Now that we have found the right location we wondered had anyone got any ideas on leaflets/brochures to inform the public of this new service available to them??]]> http://www.thecormactrust.com/forum/comments.php?DiscussionID=4 http://www.thecormactrust.com/forum/comments.php?DiscussionID=4 Mon, 29 May 2006 15:30:05 +0200 Murrough
Cormac Mac Nailín was a true sporting legend from county Tir Eoghan, winning just about every 'Peil Ghaelach' accolade imaginable.

Cormac captained Tyrone to an All-Ireland Minor Football victory in 1998. Two years later in 2000 he won a Sigerson Cup title with Queen's University and later he won an All-Ireland Under 21 title with Tyrone.

In 2001, Cormac was named "Young Footballer of the Year", before joining the senior Tyrone panel. He was a key member of the Tyrone team that won the National Football League and the Football Championship in 2003 for the first time in the county's century-long history of partipating in Gaelic Games. Coram also played on Ireland's International Rules team in October 2003. This led to him receiving his first All Star award in 2003.

Tragically, Cormac McAnallen died suddenly on March 2, 2004 from a rare viral infection of the heart. His untimely death deeply affected the Tyrone team and the world of Gaelic Games as a whole, and myself. Just over a week before his death, Cormac captained the Tyrone side that won the Dr. McKenna Cup after an overwhelming victory over Donegal at Ballybofey.

In 2004 the "Cormac McAnallen Cup", the cup that Ireland and Australia play for in the International Rules series, was named in his honour. In January 2005, the Cormac McAnallens GAC was also founded in Sydney, Australia.

In 2005, when Tyrone won their 2nd All Ireland football championship, Brian Dooher, the captain of Tyrone, dedicated the victory in Cormac's name in his acceptance speech up in the Hogan Stand. Dooher said that Cormac [i]should have been standing here instead of me [/i]and went on to say, as a tearful team manager Mickey Harte had previously done only minutes before, that Cormac immediately stated after he had been appointed captain that he had not wished the success achieved in 2003 to be his last with the county. The tens of thousands of Tyrone fans that where on the pitch after Tyrone won the match then began to chant Cormac's name on what was an intensely emotional day for all those involved in Gaelic Games in Tyrone.

May Cormac's memory last forever! Such an amazing player, sadly taken at tender age at the height of his prime in football prowess.

You will be sadly missed Cormac, may your spirit linger on!

Murrough Ó Catháin.

Also see:

http://www.thecormactrust.com

http://www.campachormaic.com

http://www.clubtyrone.com

http://tyrone.gaa.ie

http://guestbook.sparklit.com/entries?gbaction=viewResponses&gbID=106048 (Scroll down below the first four boxes on this page, to see the entries)]]> http://www.thecormactrust.com/forum/comments.php?DiscussionID=7 http://www.thecormactrust.com/forum/comments.php?DiscussionID=7 Fri, 02 Jun 2006 02:08:52 +0200 Grace
First of all I am glad to see that people are taking notice of the conditions which can cause SCD. It good to see people actually care about what happens. Im sorry for your loss, but hopefully you are helping prevent others from the same with your campaign.

Im from Limavady, Co.Derry. Last summer my sister was rushed to hospital with serious cardiac problems due to a sudden shock in her surroundings which woke her from her sleep. She only survived because she had been having small syptoms of heart problems before this occasion, she had read up on what she needed to do. She quickly acted on trying to relax and phoned for an ambulance immediately. If she hadn't of calm herself down, she would definitely not be with us today. After this incident, my entire family got screened for any trace of a heart defect.

My mother, my sister and myself where all diagnosed with Long QT syndrome last July. Its a daunting thought that we have such a serious condition, but at least I am here and can try my best to prevent any situations which can lead to my sudden death. As most are far too late to ever know they had a heart condition.

I have been diagnosed with type two, which means any sudden noises, stress or extreme emotion could lead to an irregular arythmia. Im not even mean to have alarm clocks anymore!! Personally I have tried not to let it ruin my life, as I have read stories about people who let it take over their life and barely leave the house. I count my blessings that Im still here, and that my family are too. But life is about living, not being scared of living incase life is taken from you.

I just wanted to leave a little message to say that some people do have hope and do get discovered early enough it helps prevent any unfortunate sudden deaths. So keep campaigning, its definitely not a lost cause.

Thanks for giving me some hope, and reminding me Im not the only one to have to go through this.

If you would like to contact me my email address is
rgmcginnis@hotmail.com

Thanks if you took the time to read my story. I wish you all the luck in the world with your quest to save others from this misfortune.

Grace McGinnis]]> http://www.thecormactrust.com/forum/comments.php?DiscussionID=5 http://www.thecormactrust.com/forum/comments.php?DiscussionID=5 Thu, 01 Jun 2006 20:01:33 +0200 sinciara